“Normal” is open to interpretation. That’s true for every family, but I’ve really come to understand the concept better since Baguette’s autism diagnosis. Actually, I knew it before her diagnosis–but that’s what made it okay for me to say openly that my normal is different from the normal you experience. Or you. Or that person over there.
I came across a post about what “normal” means for one family dealing with ADHD, and it got me to thinking about what is normal for us.
1) The house is always messy. Between work, commute, and ABA, we do not have time to clean. Mr. Sandwich does the laundry and I do the dishes, but the rest of the place is profoundly cluttered.
2) No “me” time. This isn’t exactly true. I get my hair colored and cut every six weeks, and about as often I get a massage. Mr. Sandwich has a (sometimes) regular Sunday morning bike ride. But with Baguette’s long-standing distaste for sleep, I can’t even read a magazine in one sitting. Recently, it took me three weeks to finish streaming a movie. We have literally years of “Castle” in our DVR–or at least we did until we gave up and deleted them, with plans to buy the DVDs at some point in the future.
3) There’s an awful lot of screaming. Baguette is frustrated by her inability to communicate. She’s also frustrated by the incessant demands of her ABA schedule. And sometimes the only way she can express that is to rage and rage and rage. As far as I’ve been able to figure it out, the only thing I can do is be there with her, as calmly as possible, and let the rage burn itself out. Friday was one of those days. After at least an hour of crying and screaming, she wore herself out until she was able to say, “I want carry me,” and I stood there with my arms around her, rocking her back and forth for at least 15 minutes. Then we sat down on the couch, and I held her on my lap until she slid down on the floor, still with her shoulder against my leg. I didn’t move until she did, because when she moved away, that meant she was feeling better. (Sorry, neighbors. This is just how it is.)
4) There’s probably a #4, but I’m too tired to come up with it.
5) The surprises never end. Baguette loves the water. She’s been teaching herself ASL–and now she’s teaching me, too. Lately she tells me she wants to play with her by saying, “Come along, Mommy,” and I have no idea where that phrase came from.
All of this will change with time. And that’s normal, too.